Denise Bebenek
Denise Bebenek is the Founder, President and driving force behind Meagan Bebenek Foundation.
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A Toronto resident and graduate of the University of Western Ontario, Honours in Psychology and the University of Toronto Faculty of Education, Denise, a former schoolteacher, is a tireless advocate for families who are touched by brain tumours.
The spirit of Meagan Bebenek Foundation is a combination of Denise’s personal experiences and mission, as well as her professional background.
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In late 2000, Denise’s youngest child, Meagan, was diagnosed with an inoperable and malignant brain tumour. She died six months later, in June 2001, two weeks past her fifth birthday. As Denise left the hospital, she envisioned a hug encompassing the building, which inspired her to organize a five-kilometer walk and “hug” event. Asking friends and family to help, Denise started planning for the first Meagan’s Walk event which took place on Mother’s Day 2002. The annual event, now known as Meagan’s HUG, culminates with participants joining hands and forming a human hug, a “circle of hope” around the Hospital for Sick Children (SickKids) in Toronto, sending a clear and simple message to all within - you are not alone.
Denise turned the tragic loss of her youngest daughter into a journey of hope and inspiration. With a deep-rooted belief that when we come together as a community we can make a collective difference, Denise has successfully harnessed that power for over two decades with a team of over 60 volunteers who work year-round to further the organization’s mission.
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Denise has volunteered for the Women’s Executive Network’s and RevolutionHER mentoring programs and serves on the De La Salle College Board. As a sought-after speaker, she has shared her story and experience with several top 100 Canadian companies and is often called upon as a patient advocate with groups like the Paediatric Brain Tumour Foundation of America, and the International Brain Tumour Alliance’s World Summit for Brain Tumour Advocates.